E sili atu ma le tasi le afe tagata na aʻafia i le faʻaleagaina o le frontotemporal (FTD), o le tuinanau sili ona taatele i lalo o le 60, na faʻapotopotoina e faʻafesoʻotaʻi, aʻoaʻo, ma faʻatasi ma se faʻalapotopotoga e malamalama i le faʻamaʻi i le Association for Frontotemporal Degeneration's (AFTD) first-ever hybrid Education Konafesi, i le Aso Faraile, Aperila 8.

O tagata na maua i le FTD, paaga tausi, tausi maʻi, tagata suʻesuʻe, fomaʻi soifua maloloina, ma tagata tomai faʻapitoa na auai i le 2022 Education Conference, i le BWI Airport Marriott latalata i Baltimore, faʻapea foʻi ma toetoe lava. Toeitiiti atoa le 200 tagata na auai i Baltimore mo le uluai aafiaga o le konafesi talu mai le 2019, ae sili atu i le 1,000 tagata resitala mai 29 atunuu eseese na auai i luga o le livestream.

O le aso na aofia ai faʻamatalaga o loʻo taulaʻi atu i laʻasaga lata mai i suʻesuʻega FTD, le eseesega o le FTD tausiga paaga, ma le gagana o le tuinanau, na tuʻuina atu e tagata atamamai i le FTD / dementia field. Na mafai uma e le tagata lava ia ma tagata auai faʻapitoa ona auai i faʻasalalauga faʻasalalauga fefaʻasoaaʻi na vaʻavaʻai loloto i itu taua o le faigamalaga FTD.

AFTD's Persons with FTD Advisory Council, o se vaega o tagata o lo'o nonofo fa'atasi ma FTD o lo'o fesoasoani e fa'ailoa galuega a le AFTD, na fa'asoa mai lo latou va'aiga i le ola ai ma le fa'ama'i. Mulimuli ane, o le sui o le Komiti o le AFTD Rita Choula, MA, o le faatonu o le tausiga i le AARP Public Policy Institute, na tuʻuina atu le lauga autu o le konafesi, faʻasoa le malaga a lona tina ma FTD ma le auala na faʻatautaia ai e lona aiga le poto masani. Na auina atu e Ms. Choula se valaau mo tagata taʻitoʻatasi ma tagata na aʻafia i le FTD ina ia "lototele" i le fautua mo le tausiga, mo e pele ia i latou ma i latou lava.

O le fa'avae o le AFTD o Helen-Ann Comstock, o le Pule Sili o le AFTD Susan LJ Dickinson, ma le ta'ita'ifono o le Komiti Fa'atonu a le AFTD, o David Pfeifer, na fofogaina le saunoaga fa'ai'u a le fonotaga, lea na latou manatunatu ai i le tala fa'asolopito o le fa'alapotopotoga a'o aga'i atu le AFTD i lona 20 tausaga.

O failauga fa'aopoopo fa'apitoa i le fa'amoemoe o lenei tausaga e aofia ai sui o le Fono Faufautua Fa'afoma'i a le AFTD Chiadi Onyike, MD, MHS; David Irwin, MD, tagata suʻesuʻe autu o le Penn Digital Neuropathology Lab; Tania Gendron, PhD, o le Mayo Clinic i Florida; Angela Taylor, faatonu sinia o suʻesuʻega ma faʻasalalauga i le Lewy Body Dementia Association; ma Laynie Dratch, ScM, CGC, o le Iunivesite o Pennsylvania's FTD Center.

OA MEA E AVEA MAI LENEI TUSI:

The day consisted of presentations focusing on the latest strides in FTD research, the diverse FTD care partner experience, and the language of dementia, presented by experts in the FTD/dementia field.
Later, AFTD Board member Rita Choula, MA, the director of caregiving at the AARP Public Policy Institute, delivered the conference’s keynote address, sharing her mother’s journey with FTD and how her family navigated the experience.
E sili atu ma le tasi le afe tagata na aʻafia i le faʻaleagaina o le frontotemporal (FTD), o le tuinanau sili ona taatele i lalo o le 60, na faʻapotopotoina e faʻafesoʻotaʻi, aʻoaʻo, ma faʻatasi ma se faʻalapotopotoga e malamalama i le faʻamaʻi i le Association for Frontotemporal Degeneration's (AFTD) first-ever hybrid Education Konafesi, i le Aso Faraile, Aperila 8.